The Passport for Care ProgramDavid Poplack, M.D.
Director, Texas Children's Cancer Center
Baylor College of Medicine
- The Passport for Care (PFC) Program is in development as an online resource for childhood cancer survivors. These patients face late and long-term physiological effects; psychosocial, employment, and insurance issues; and often lack consistent long-term follow-up care. Patients who successfully complete treatment usually transition back to primary care physicians who may lack understanding of the survivor's medical history and may not be familiar with medical issues faced by this population. These patients thus lack access to follow-up medical information, and there is no mechanism to alert survivors to important information relevant to their survivorship status.<
- PFC provides survivors with a portable core summary of the treatment they received for their cancers, individualized guidelines for continuing care, alerts for changes in these guidelines, and opportunities to participate in clinical research relevant to their needs. Participation in PFC is voluntary and requires informed consent. The survivors also control access to their own information.
- PFC also contains a physicians' portal. With the patients' permission, physicians can access information, including guidelines for care based on the type of therapy a patient received and when they received it; potential side effects of treatment; evaluations that should be performed; and lists of health care providers who have treated the patients. PFC also can provide physicians with a yearly summary of all recommended evaluations.
- PFC provides links to local services based on a patient's zip code, recommendations for healthy lifestyle behaviors, and links to survivor forums and survivorship stories.
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