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National Cancer Institute

Plenary Session: Communications and eHealth

Advances in electronic communications have made information more easily accessible to many cancer patients and survivors. Nonetheless, issues remain to be resolved regarding access to records for patients, and communication between doctors is especially important when patients finish treatment and return to a primary care setting in which health care practitioners may be unaware of their needs as cancer survivors. Several informatics and electronic communication systems were described that will help maintain continuity of records and enhance communication among survivors and those involved with their care. Dr. Bradford Hesse spoke about the need to develop electronic record-keeping systems to ensure quality and continuity of care under all circumstances. Dr. David Poplack described the Passport for Care Program, a system that provides a single site for organizing and sharing patient medical records. Dr. Neeraj Arora spoke about the difficulties cancer survivors face when navigating the sometimes overwhelming amount of information available on cancer and its aftermaths. Dr. David Gustafson described the Comprehensive Health Enhancement Support System, a Web-based support site for cancer patients and their caregivers.

Presentation Materials
Deep Support: Using eHealth Technologies to Foster Healing Relationships
Bradford Hesse, Ph.D.
Highlights | Presentation (PDF)
Passport for Care: An online resource for survivors of childhood cancer
David Poplack, M.D.
Highlights | Abstract (PDF)
Cancer Survivors - Successfully Swimming or Struggling to Stay Afloat in a Sea of Cancer Information?
Neeraj Arora, Ph.D.
Highlights | Presentation (PDF)
Using a Comprehensive Informatics Support System to Improve Survivor Outcomes
David Gustafson, Ph.D.
Highlights | Abstract (PDF)
Cancer Survivor Panel Discussion
Virgil Simons
Susan Lowell Butler
Gilles Frydman

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