DCCPS by the Numbers — 2020
As a window into the many ways DCCPS provides return on investment, we highlight here just a few snapshots of progress from the past year.
Strategies for Team Science Success: Handbook of Evidence-Based Principles for Cross-Disciplinary Science and Practical Lessons Learned from Health Researchers has been downloaded 28,000 times since its publication in December 2019. This team science textbook was edited by Drs. Kara Hall, Amanda Vogel, and Robert Croyle, and it features innovative tools and resources for effective, cross-disciplinary team science that can be beneficial for researchers and practitioners.
As of September 2020, 607 publications in 234 peer-reviewed journals had used data from the Health Information National Trends Survey (HINTS), which monitors changes in the rapidly evolving fields of health communication and health information technology.
In FY 2020, the National Collaborative on Childhood Obesity Research Youth Compendium of Physical Activities was accessed 15,800 times. This resource provides a list of 196 activities common in youth and the estimated energy cost of each activity.
In FY 2020, more than 30,000 quit plans were created using Smokefree.gov’s updated Create My Quit Plan, an interactive web-based tool for people seeking to develop a comprehensive step-by-step plan to quit smoking.
The Perspectives on Cancer and Aging: The Arti Hurria Memorial Webinar Series was established in FY 2020 to honor the legacy of the late Dr. Arti Hurria, MD, a pioneer in the fields of geriatrics and oncology and a BRP grantee and collaborator. The webinar series serves as a platform to engage and build a community of researchers dedicated to cancer and aging research. In its inaugural year, the quarterly webinars attracted 689 participants.
Since 1987, the Patterns of Care (POC) initiative has evaluated the dissemination of state-of-the-art cancer therapy and diagnostics into community oncology practice; identified patient-, provider-, and system-level factors that are associated with receipt and utilization of cancer care; and disseminated findings through scientific publications and presentations. To date, POC has collected information on 20 types of cancer, and 70 papers have been published highlighting the results of this work.
There were 31,997 randomly selected adults who participated in the redesigned 2019 National Health Interview Survey, which includes a five-minute Cancer Control Supplement. 2019 NHIS data were released in September and are publicly available for analysis.
Over 30 language translations are available—and 10 more are in development—for the Patient-reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE), a patient-reported outcome measurement system developed by NCI to capture symptomatic adverse events in patients on cancer clinical trials.
There have been 2,592 publications using the HealthMeasures tool , which includes the PROMIS, NeuroQOL, ASCQ-Me, and NIH Toolbox patient-centered measurement tools that enable investigators to capture data on symptoms, functioning, and health-related quality of life.
There were 174 requests in FY 2020 for new or updated SEER-CMS linked data, including SEER-Medicare (148 requests), SEER-MHOS (11 requests), and SEER-CAHPS (15 requests).
The NCI Community Oncology Research Program (NCORP) is a national network that brings cancer prevention clinical trials and cancer care delivery research to people in their communities. Seven Research Bases develop and coordinate clinical trials and cancer care delivery research for 46 community sites to bring NCI-approved trials to patients in 1,000+ locations in diverse, community-based hospitals, private practices, and other locations.
The NCI Cohort Consortium has more than 7 million participants in 60 international cohorts and more than 50 projects that have made scientific discoveries about cancer risk factors and technical advances in cohort methodologies.
The Cancer Epidemiology Descriptive Cohort Database (CEDCD) contains descriptive information from more than 60 cohorts in 17 different countries. The CEDCD includes brief descriptions of the cohorts, contact information, questionnaires, types of data collected, enrollment numbers, number of cancer cases, and number of biospecimens collected. Its purpose is to foster collaborations and encourage cohort-based research.
In 2020, an average of 111 studies per month registered to use the Automated Self-Administered 24-hour (ASA24®) Dietary Assessment Tool, accounting for 7,920 recall/record days per month collected by researchers. The ASA24 is a web-based tool that enables multiple, automatically coded, self-administered 24-hour recalls. Beginning with the 2016 release, ASA24 also permits data collection using single or multi-day food records.
Between January and September 2020, code for the Healthy Eating Index-2015 (HEI-2015) has been downloaded 1,690 times. Scientists in DCCPS and the USDA collaborated to create the HEI, a measure of diet quality that can be used to assess compliance with the US Dietary Guidelines for Americans and monitor changes in dietary patterns. The HEI also is a valuable tool for epidemiologic and economic research and can be used to evaluate nutrition interventions and consumer nutrition education programs.
The database of Genotypes and Phenotypes (dbGaP) at the National Center for Biotechnology Information (NCBI) archives datasets and makes them available to the scientific community. As of 2020, 63 datasets from DCCPS-funded studies can be accessed through dbGaP.
The 2020 Training Institute in Dissemination and Implementation Research in Cancer (TIDIRC) provided 42 investigators with a thorough grounding in conducting dissemination and implementation (D&I) research with a specific focus on cancer across the cancer control continuum. In its third year, the institute was delivered entirely online and was led by a faculty of leading experts in theory, methods, and evaluation approaches in implementation science.
In 2020, 403 participants attended the main sessions of the second Implementation Science Consortium in Cancer (ISCC) meeting, convened online. The objectives of the ISCC are to foster communication among investigators engaged in implementation science projects across the cancer continuum; promote collaborative research projects to fill implementation science gaps that would extend beyond a single study; identify common theoretical, methodological, or empirical challenges in implementation science in cancer; and develop solutions.
DCCPS hosts more than 45 fellows each year, with opportunities for people at most levels of educational training, from high school students to post-docs. In a recent survey, 97% of DCCPS fellows noted that they were Satisfied or Very Satisfied with their experience as a fellow.
Diversity is an important value throughout the division, which is reflected in the diversity of its fellows. Of the current fellows in DCCPS, 36% are African American, Hispanic, or Asian.
NCI’s Classification of Laws Associated with School Students includes data, maps, and state profiles to compare 31 policy areas governing school nutrition and physical education across all 50 states and the District of Columbia to assess differences across states and changes over time.
There have been 258,345 views of the “Did You Know? HPV Español” video, part of the “Did You Know?” video series. A collaboration between DCCPS’ Surveillance, Epidemiology, and End Results (SEER) Program and NCI’s Office of Communications and Public Liaison, each brief “Did You Know?” video discusses a specific cancer type or a cancer-related topic. The series may be viewed on SEER’s website, as well as on NCI’s YouTube Channel under the “Cancer Statistics” playlist. There is now a total of 26 “Did You Know?” videos available.
DCCPS’ Surveillance, Epidemiology, and End Results (SEER) Program collects and publishes cancer incidence, prevalence, and survival data from population-based cancer registries covering approximately 34.6% of the US population. The SEER Program is the only comprehensive source of population-based information in the United States that includes stage of cancer at the time of diagnosis and patient survival data. Begun with nine registries in 1973, it provides the greatest longevity for population-based cancer statistics in the United States.
From January through September 2020, there were 1.6 million hits on SEER*Rx. SEER*Rx was developed as a one-step lookup for coding oncology drug and regimen treatment categories in cancer registries.
From January through September 2020, there were 13,352 downloads of SEER*Stat. The SEER*Stat statistical software provides a convenient mechanism for analysis of SEER and other cancer-related databases, enabling users to view individual cancer records and to produce statistics for studying the impact of cancer on a population.
From January through September 2020, there were 5,003 downloads of Joinpoint, a statistical software for the analysis of trends using joinpoint models—models in which several different lines are connected together at the “joinpoints.”