Webinar
Event Materials
The Division of Cancer Control and Population Sciences (DCCPS) of the National Cancer Institute (NCI) sponsored this virtual meeting to discuss gaps in knowledge and areas of unmet needs for individuals living with metastatic and advanced cancers. This meeting brought together experts in research and clinical care, as well as cancer survivors and advocates, to explore areas of high priority for metastatic and advanced cancer survivorship research.
Background
Advances in diagnosis, treatment, and supportive care have resulted in a growing population of survivors with advanced or metastatic cancer. Many have experienced an extended positive response to treatment, disease stability, and/or improvement of disease burden, and may cycle on and off treatment. This survivor group includes, but is not limited to, individuals with advanced or metastatic disease receiving newer therapies, such as targeted therapies and immunotherapies, as well as individuals living with chronic, low-grade cancers, including certain forms of leukemia and lymphoma.
Individuals diagnosed with metastatic or advanced cancer may have significant unmet needs in several areas of survivorship, including symptom management, psychosocial support, comorbidity management, caregiver support, care coordination, and communication around goals of care. It is important to understand the extent of these needs and to identify how best to address them.
Goals
The goals of this meeting are to bring together researchers, clinicians, survivors, and advocates representing a broad range of expertise and experiences to:
- Define the current state of metastatic and advanced cancer survivorship research
- Identify unmet needs among this population
- Discuss research gaps and opportunities in the areas of epidemiology, healthcare delivery, behavioral sciences, and symptom management
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TUESDAY, MAY 11, 2021 | 11:00 AM – 4:00 PM |
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10:45 AM |
Arrival |
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11:00 AM |
Agenda Overview Trish Silber, Aliniad Consulting Partners, Inc. Logistics ICF Goals Day 2 Dr. Lisa Gallicchio and Dr. Michelle Mollica, NCI |
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11:15 AM |
Session: Psychosocial Research Session chair: Dr. Jennifer Guida, NCI Presenters: Dr. William Pirl, Dana-Farber Cancer Institute Topic: Overview of Psychosocial Issues in Living with Metastatic Cancer Dr. Areej El-Jawahri, Massachusetts General Hospital Topic: Living with Prognostic Uncertainty: Current Knowledge and Future Directions Dr. Nick Dionne-Odom, University of Alabama at Birmingham Topic: Trends Impacting Research with Family Caregivers of Individuals with Advanced Metastatic Cancers |
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12:00 PM |
Small Group Discussion: Psychosocial Research This will be held in the main WebEx room and viewed by all. Dr. Jennifer Guida, NCI Dr. William Pirl, Dana-Farber Cancer Institute Dr. Nick Dionne-Odom, University of Alabama at Birmingham Dr. Areej El-Jawahri, Massachusetts General Hospital Dr. Paul Han, NCI Dr. Allison Applebaum, Memorial Sloan Kettering Cancer Center Angela Baker, Survivor/Advocate panelist |
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12:30 PM |
Break (20 min.) |
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12:50 PM |
Session: Health Care Delivery Issues Session chair: Kate Castro, NCI Presenters: Dr. Bijal Balasubramanian, University of Texas Health Sciences Center at Houston Topic: Delivering Comprehensive, Coordinated Care for Individuals Living with Advanced and Metastatic Cancers Dr. Michaela Dinan, Yale School of Public Health Topic: Challenges and Opportunities in Analyzing Patterns of Care for Patients Living with Metastatic and Advanced Cancers Dr. Veena Shankaran, University of Washington Topic: Addressing Financial Hardship in Advanced Cancer Patients and Caregivers |
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1:25 PM |
Small Group Discussion: Health Care Delivery Issues This will be held in the main WebEx room and viewed by all. Kate Castro, NCI Dr. Bijal Balasubramanian, University of Texas Health Sciences Center at Houston Dr. Michaela Dinan, Yale School of Public Health Dr. Veena Shankaran, University of Washington Dr. Shawna Hudson, Rutgers Cancer Institute of New Jersey Dr. Raymond Osarogiagbon, Baptist Health System Gregory Garber, Thomas Jefferson University Laura Esfeller, Survivor/Advocate panelist |
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2:05 PM |
Break (20 min.) |
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2:25 PM |
Session: Health Behaviors Research Session chair: Dr. Frank Perna, NCI Presenters: Dr. Neil Iyengar, Memorial Sloan Kettering Cancer Center Topic: Physical Activity Patterns and Exercise Interventions for Patients Living with Metastatic Cancer Dr. Oxana Palesh, Stanford University Topic: Sleep and Circadian Disruption in Metastatic Cancer Dr. Noelle LoConte, University of Wisconsin Topic: Use of Alcohol in Patients with Metastatic Cancers |
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3:00 PM |
Small Group Discussion: Health Behaviors Research This will be held in the main WebEx room and viewed by all. Dr. Frank Perna, NCI Dr. Neil Iyengar, Memorial Sloan Kettering Cancer Center Dr. Oxana Palesh, Stanford University Dr. Noelle LoConte, University of Wisconsin Dr. Mary Platek, Roswell Park Comprehensive Cancer Center Dr. Wendy Demark-Wahnefried, University of Alabama at Birmingham Jamil Rivers, Survivor/Advocate panelist |
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3:40 PM |
Wrap-Up Next Steps Meeting Evaluation |
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4:00 PM |
End |
Survivor/Advocate Panel
- Executive Summary – National Cancer Institute Meeting on Survivorship Needs for Individuals Living with Advanced and Metastatic Cancers
- Manuscript – Survivorship for Individuals Living With Advanced and Metastatic Cancers: National Cancer Institute Meeting Report
- Article - Current state of funded National Institutes of Health grants focused on individuals living with advanced and metastatic cancers: a portfolio analysis
- Metastatic Workshop Program Booklet - Virtual Meeting on Survivorship Needs for Individuals Living with Advanced and Metastatic Cancers