This page provides resources for health care researchers focused on cancer survivorship. The cancer survivorship field encompasses an increasing breadth of disciplines and expertise, working together to enhance the health and well-being of all cancer survivors and caregivers.
For information about cancer types, treatment, and clinical trials, as well as links to other NCI resources, please go to the NCI homepage.
For upcoming webinars please visit the OCS Events page.
Resources for Investigators
NCI-Supported Research Resources
Explore resources and data from NCI-supported cohorts, programs, surveys, and supplements.
Evidence-Based Cancer Control Programs (formerly RTIPs)
Health Information National Trends Survey (HINTS)
Medical Expenditure Panel Survey (MEPS): Experiences with Cancer Survivorship Supplement
National Health Interview Survey (NHIS) Cancer Control Supplement (CCS)
Tools
Learn more about a variety of tools and resources that are available for research use.
Automated Self-Administered 24-hour (ASA24®) Dietary Assessment Tool
Follow-up Care Use Among Survivors (FOCUS) survey
Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Patient-Reported Outcomes Measurement Information System (PROMIS)
Additional Tools from NCI DCCPS
Epidemiology and Genomics Research Program
Statistics
Reports and Publications
Explore key survivorship-related reports and publications from the past 10 years that have helped shape survivorship research and practice.
2023
- Survivorship Science at the National Institutes of Health 2017-2021, Journal of Cancer Survivorship (2023)
2022
- Estimation of the Numbers of Individuals Living with Metastatic Cancer in the United States, Journal of the National Cancer Institute (2022)
- Cancer Treatment and Survivorship Statistics, 2022, CA: A Cancer Journal for Clinicians (2022)
- Transitions of Care From Pediatric to Adult Services for Children With Special Healthcare Needs, Agency for Healthcare Research and Quality (2022)
- Navigating Pediatric to Adult Healthcare Transition: A National Institutes of Health Workshop, Journal of Pediatrics (2022)
- Models of Care That Include Primary Care for Adult Survivors of Childhood Cancer: A Realist Review, Agency for Healthcare Research and Quality (2022)
2021
- NCI Office of Cancer Survivorship: Twenty-five Years of Progress (2021)
- Survivorship for Individuals Living with Advanced and Metastatic Cancers: National Cancer Institute Meeting Report, Journal of the National Cancer Institute (2021)
- Large-Scale North American Cancer Survivorship Surveys: 2011-2019 Update, Journal of Cancer Survivorship (2021)
- Evidence Gaps in Cancer Survivorship Care: A Report From the 2019 National Cancer Institute Cancer Survivorship Workshop, Journal of the National Cancer Institute (2021)
- Disparities and Barriers to Pediatric Cancer Survivorship Care, Agency for Healthcare Research and Quality (2021)
2020
- Childhood Cancer and Functional Impacts Across the Care Continuum, National Academies of Sciences, Engineering and Medicine (2020)
- Follow-Up Care for Breast and Colorectal Cancer Across the Globe: Survey Findings From 27 Countries, Journal of Clinical Oncology Global Oncology (2020)
2019
- Developing a Quality of Cancer Survivorship Care Framework: Implications for Clinical Care, Research, and Policy, Journal of the National Cancer Institute (2019)
- Survivorship Science at the NIH: Lessons Learned From Grants Funded in Fiscal Year 2016, Journal of the National Cancer Institute (2019)
2018
- Models of Care for Survivors of Childhood Cancer From Across the Globe: Advancing Survivorship Care in the Next Decade, Journal of Clinical Oncology (2018)
2017
- Going Beyond Being Lost in Transition: A Decade of Progress in Cancer Survivorship, Journal of Clinical Oncology (2017) – co-authored by Dr. Julia Rowland, a look back at the 2006 IOM Report
2016
- Anticipating the “Silver Tsunami”: Prevalence Trajectories and Comorbidity Burden among Older Cancer Survivors in the United States, Cancer Epidemiology, Biomarkers & Prevention (2016)
- Championing Survivorship Science and Care Since 1996 This 2016 booklet, marking the 20th anniversary of the Office of Cancer Survivorship, provides an overview of the creation of the office and its ongoing work to improve the lives of cancer survivors.
2023
- Survivorship Science at the National Institutes of Health 2017-2021, Journal of Cancer Survivorship (2023)
2022
- Estimation of the Numbers of Individuals Living with Metastatic Cancer in the United States, Journal of the National Cancer Institute (2022)
- Cancer Treatment and Survivorship Statistics, 2022, CA: A Cancer Journal for Clinicians (2022)
- Transitions of Care From Pediatric to Adult Services for Children With Special Healthcare Needs, Agency for Healthcare Research and Quality (2022)
- Navigating Pediatric to Adult Healthcare Transition: A National Institutes of Health Workshop, Journal of Pediatrics (2022)
- Models of Care That Include Primary Care for Adult Survivors of Childhood Cancer: A Realist Review, Agency for Healthcare Research and Quality (2022)
2021
- NCI Office of Cancer Survivorship: Twenty-five Years of Progress (2021)
- Survivorship for Individuals Living with Advanced and Metastatic Cancers: National Cancer Institute Meeting Report, Journal of the National Cancer Institute (2021)
- Large-Scale North American Cancer Survivorship Surveys: 2011-2019 Update, Journal of Cancer Survivorship (2021)
- Evidence Gaps in Cancer Survivorship Care: A Report From the 2019 National Cancer Institute Cancer Survivorship Workshop, Journal of the National Cancer Institute (2021)
- Disparities and Barriers to Pediatric Cancer Survivorship Care, Agency for Healthcare Research and Quality (2021)
2020
- Childhood Cancer and Functional Impacts Across the Care Continuum, National Academies of Sciences, Engineering and Medicine (2020)
- Follow-Up Care for Breast and Colorectal Cancer Across the Globe: Survey Findings From 27 Countries, Journal of Clinical Oncology Global Oncology (2020)
2019
- Developing a Quality of Cancer Survivorship Care Framework: Implications for Clinical Care, Research, and Policy, Journal of the National Cancer Institute (2019)
- Survivorship Science at the NIH: Lessons Learned From Grants Funded in Fiscal Year 2016, Journal of the National Cancer Institute (2019)
2018
- Models of Care for Survivors of Childhood Cancer From Across the Globe: Advancing Survivorship Care in the Next Decade, Journal of Clinical Oncology (2018)
2017
- Going Beyond Being Lost in Transition: A Decade of Progress in Cancer Survivorship, Journal of Clinical Oncology (2017) – co-authored by Dr. Julia Rowland, a look back at the 2006 IOM Report
2016
- Anticipating the “Silver Tsunami”: Prevalence Trajectories and Comorbidity Burden among Older Cancer Survivors in the United States, Cancer Epidemiology, Biomarkers & Prevention (2016)
- Championing Survivorship Science and Care Since 1996 This 2016 booklet, marking the 20th anniversary of the Office of Cancer Survivorship, provides an overview of the creation of the office and its ongoing work to improve the lives of cancer survivors.