This page provides numerous cancer-related resources for advocates. For information about cancer types, treatment, and clinical trials, as well as links to other resources, please go to the NCI homepage.
Facing Forward: Making a Difference in Cancer (August 2018 Update)
Get an overview of the potential benefits of becoming involved in cancer-related activities, such as helping with outreach and education, fundraising, or raising awareness about research or public health issues.
NCI Office of Advocacy Relations (OAR)
OAR is NCI’s principal conduit for engaging the cancer advocacy community. Learn about opportunities for advocates to participate in research and other NCI-sponsored activities.
NCI Council of Research Advocates (NCRA)
NCRA is NCI’s only federal advisory committee comprised solely of advocate leaders at NCI. The group makes recommendations to NCI’s director, from the perspective and viewpoint of a cancer research advocate on a wide variety of issues, programs, and research priorities.
Below are key survivorship-related reports from the past 10 years that have helped shape survivorship research and practice.
- Childhood Cancer and Functional Impacts Across the Care Continuum, National Academies of Sciences, Engineering and Medicine (2020)
- Follow-Up Care for Breast and Colorectal Cancer Across the Globe: Survey Findings From 27 Countries, Journal of Clinical Oncology Global Oncology (2020).
- Developing a Quality of Cancer Survivorship Care Framework: Implications for Clinical Care, Research, and Policy, Journal of the National Cancer Institute (2019)
- Models of Care for Survivors of Childhood Cancer From Across the Globe: Advancing Survivorship Care in the Next Decade, Journal of Clinical Oncology (2018)
- Survivorship Science at the NIH: Lessons Learned From Grants Funded in Fiscal Year 2016 , Journal of the National Cancer Institute (2019)
- Going Beyond Being Lost in Transition: A Decade of Progress in Cancer Survivorship , Journal of Clinical Oncology (2017) – co-authored by Dr. Julia Rowland, a look back at the 2006 IOM Report
- Anticipating the “Silver Tsunami”: Prevalence Trajectories and Comorbidity Burden among Older Cancer Survivors in the United States , Cancer Epidemiology, Biomarkers & Prevention (2016)
- Cancer Survivors in the United States: Prevalence across the Survivorship Trajectory and Implications for Care , Cancer Epidemiology, Biomarkers & Prevention (2013)
- Receipt of Psychosocial Care among Cancer Survivors in the United States, Journal of Clinical Oncology (2013)
- Dr. Julia Rowland Discusses the Developing Field of Cancer Survivorship (2012)
American Society of Clinical Oncology (ASCO) Clinical Practice Follow-Up Guidelines
Learn about ASCO’s practice recommendations for specific areas of cancer.
Championing Survivorship Science and Care Since 1996
This 2016 booklet, marking the 20th anniversary of the Office of Cancer Survivorship, provides an overview of the creation of the office and its ongoing work to improve the lives of cancer survivors and their loved ones.
The Biennial Cancer Survivorship Research Conference, which took place every two years from 2002 through 2016, brought together researchers, clinicians, cancer survivors, advocates, policy-makers, and public health experts to share and learn about the most up-to-date cancer survivorship research.
- 2016 Biennial Cancer Survivorship Research Conference: Innovation in a Rapidly Changing Landscape
- 2014 Biennial Cancer Survivorship Research Conference: Advancing Survivorship Care through Multilevel Collaborations
- 2012 Biennial Cancer Survivorship Research Conference: Translating Science to Care
- 2010 Biennial Cancer Survivorship Research Conference: Recovery and Beyond
- 2008 Biennial Cancer Survivorship Research Conference - Cancer Survivorship Research: Mapping the New Challenges
- 2006 Biennial Cancer Survivorship Research Conference - Cancer Survivorship: Embracing the Future
- 2004 Biennial Cancer Survivorship Research Conference - Cancer Survivorship: Pathways to Health After Treatment Conference