For Advocates

This page provides numerous cancer-related resources for advocates. For information about cancer types, treatment, and clinical trials, as well as links to other resources, please go to the NCI homepage.

Guidelines
Archived Resources

Getting Involved

Facing Forward: Making a Difference in Cancer (August 2018 Update)

Get an overview of the potential benefits of becoming involved in cancer-related activities, such as helping with outreach and education, fundraising, or raising awareness about research or public health issues.

NCI Office of Advocacy Relations (OAR)

OAR is NCI’s principal conduit for engaging the cancer advocacy community. Learn about opportunities for advocates to participate in research and other NCI-sponsored activities.

NCI Council of Research Advocates (NCRA)

NCRA is NCI’s only federal advisory committee comprised solely of advocate leaders at NCI. The group makes recommendations to NCI’s director, from the perspective and viewpoint of a cancer research advocate on a wide variety of issues, programs, and research priorities.

Reports

Below are key survivorship-related reports from the past 10 years that have helped shape survivorship research and practice.

Childhood Cancer and Functional Impacts Across the Care Continuum , National Academies of Sciences, Engineering and Medicine (2020)
Follow-Up Care for Breast and Colorectal Cancer Across the Globe: Survey Findings From 27 Countries , Journal of Clinical Oncology Global Oncology (2020).
Developing a Quality of Cancer Survivorship Care Framework: Implications for Clinical Care, Research, and Policy , Journal of the National Cancer Institute (2019)
Models of Care for Survivors of Childhood Cancer From Across the Globe: Advancing Survivorship Care in the Next Decade, Journal of Clinical Oncology (2018)
Survivorship Science at the NIH: Lessons Learned From Grants Funded in Fiscal Year 2016 , Journal of the National Cancer Institute (2019)
Going Beyond Being Lost in Transition: A Decade of Progress in Cancer Survivorship , Journal of Clinical Oncology (2017) – co-authored by Dr. Julia Rowland, a look back at the 2006 IOM Report
Anticipating the “Silver Tsunami”: Prevalence Trajectories and Comorbidity Burden among Older Cancer Survivors in the United States , Cancer Epidemiology, Biomarkers & Prevention (2016)
Cancer Survivors in the United States: Prevalence across the Survivorship Trajectory and Implications for Care , Cancer Epidemiology, Biomarkers & Prevention (2013)
Receipt of Psychosocial Care among Cancer Survivors in the United States, Journal of Clinical Oncology (2013)
Dr. Julia Rowland Discusses the Developing Field of Cancer Survivorship (2012)

Publications and News

Facing Forward Series

Designed to educate cancer survivors, family members, and health care providers about the challenges associated with life after cancer treatment.

News and Highlights

View recent cancer survivorship news.

Guidelines

American Society of Clinical Oncology (ASCO) Clinical Practice Follow-Up Guidelines

Learn about ASCO’s practice recommendations for specific areas of cancer.

NCCN Guidelines® for Survivorship

The National Comprehensive Cancer Network (NNCN) Guidelines for survivorship focus on eight common impacts of cancer diagnosis and treatment, and include a sample assessment tool. NCCN is an alliance of 23 cancer centers around the country.

Archived Resources

Championing Survivorship Science and Care Since 1996

This 2016 booklet, marking the 20^th anniversary of the Office of Cancer Survivorship, provides an overview of the creation of the office and its ongoing work to improve the lives of cancer survivors and their loved ones.

Past Biennial Cancer Survivorship Research Conferences

The Biennial Cancer Survivorship Research Conference, which took place every two years from 2002 through 2016, brought together researchers, clinicians, cancer survivors, advocates, policy-makers, and public health experts to share and learn about the most up-to-date cancer survivorship research.